Registered charity number 271775



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BAKPA News

We have a quarterly newsletter sent to members.

Please forward articles for submission to Mike McAllister at:

chairman@bakpa.org.uk


Survey

A survey looking at psychological reactions to physical illness is being conducted by Clinical Psychologists at the University of Bath and Southmead Hospital. Anyone with CKD is invited to take part, it can be found at:

 https://bathpsychology.eu.qualtrics.com/SE/?SID=SV_2ai9AbRrb1ljQgd&Q_JFE=0


Walking Offa’s Dyke Path for BAKPA

To mark 30 years of a trouble free kidney transplant, Pete Sayers is raising money for Bakpa with a 177 mile walk over a fortnight in 2017. Orginally planned for May, a bad hand injury that will necessitate a lot of physio means that it is now scheduled to take place in the autumn.

Meanwhile Pete has already raised over £1400 for BAKPA via JustGiving (link below).  Well done Pete, and we hope that your hand is soon fully functioning!











Pete’s main aim is to encourage people to sign up to be an organ donor. In addition he is raising money for charity, and has set up a JustGiving page in favour of BAKPA: https://www.justgiving.com/fundraising/peter-sayers



Renal Intervention (Day Case) Unit update

The Day Case Unit was fitted out in 2015 (read here) and has been very successful. The donation from BAKPA has now been acknowledged by this plaque on the door.










Donation from a Bristol Drama Group















The Bartholomites are a drama group based in St Andrews, Bristol. Every year they perform a pantomime and this year it was Dick Whittington. They always choose a charity to support and ask the audience if they would like to put money in a collection pot after each of the four performances.  This year they chose BAKPA, as a thank you for the care given to an ex-Bartholomite.

They were pleased to give BAKPA a cheque for £471.39, the sum raised.







Congratulations to Valerie


80 years old and 38 years of her transplanted kidney



Great Grandmother Valerie Coombe of Charlton Kings, near Cheltenham recently celebrated her 80th birthday with her husband Pete, Son and two grandsons and one granddaughter, three great grandsons and one great granddaughter and all her family and friends at the Lilley Brook Golf Club.



It was a joyous occasion which was thoroughly enjoyed by all, and to make it even more special Valerie had no idea that her sister Jenny had flown over from Florida for the special celebration until she walked into the room. Her love for her family can be seen by the numerous photographs all around her sitting room showing how close they all are.






Valerie had her renal transplant 38 years ago, but at that time she was told it would probably last 5 years if she was lucky. Thanks to the devotion and support of her husband Pete and family and all the amazing staff at the Renal Unit in Southmead Hospital she lives to tell the tale.


Valerie has always been a good supporter of the Bristol Area Kidney Patients Association who help both the Renal Unit and Patients wherever possible, she collected donations in lieu of presents and raised £705 for the Charity as her way of saying thank you for her special gift of life.








Opening of new Renal Day Case Unit at Southmead

Monday 30/11/2015


A new day case unit was officially opened at Gate 8a on level 4. The two-bedded room within the renal inpatient ward in the Brunel building has been funded by the Bristol Area Kidney Patients’ Association (BAKPA) to improve the experience of patients coming in for biopsies and to have dialysis lines fitted or removed.

The money was donated to the charity by Philip Mann in recognition of the 25th anniversary of his kidney transplant at Southmead Hospital.

The unit serves as a recovery area for patients who have the planned day case procedures on the ward. Depending on the procedure they have undergone patients will stay in the unit for an average of two to six hours.

BAKPA chairman Mike McAllister, who has been involved with the charity since he had his first transplant in 1986, said: “It’s great to be able to see the fulfilment of what we stand for – patients working for patients.

“Knowing what it is like to be ill and on dialysis makes us want to put back what we got out of it while making things easier for patients.

“It is a pleasure to have raised funds for this unit on behalf of BAKPA.”

Philip Mann, who received his kidney in June 1990, said: “I felt I should mark the anniversary in some way so I made a contribution towards this unit.

“I was involved in BAKPA as a committee member when I lived in Bristol and looked them up. I remembered Mike from all those years ago and he told me about this and it seemed worthwhile.”

Renal Clinical Director, Rommel Ravanan, thanked the members of BAKPA for their contribution to creating the Renal Intervention Unit.

“The help we have received towards this unit will benefit the patient population not just this year and next but for many years going forward,” he said.

More photos below:















The 2 bed Day Case Unit















Renal Unit staff and BAKPA members in the new Day Case Unit
















BAKPA members present at the opening




Fundraising in memory of Marlene Fisher November 2015



















Thanks to James Fisher and some friends who raised over £820.00, under the name of ‘Team Fisher’ at the Cardiff Marathon which took place in October, to raise funds for BAKPA in memory of his Mother Mrs Marlene Fisher, mostly through their JustGiving page (www.justgiving.com/MarleneFisher/). All the members of the team finished the race. James wrote the following before the event:

“Team Fisher are running in memory of a wonderful lady, Mum. Marlene Fisher spent her last few days being in great care of the Bristol Kidney Patients Association. On Sunday 4th October we finally get to thank the charity as we are running the Cardiff Half Marathon in memory of Mum x

Mum had serious Kidney problems throughout her life and was very lucky to have been given Two successful Kidney transplants, the first kidney lasted over 10 years which was twice as long as predicted time. In-between transplants, she spent an awful lot of her time travelling to and from Bristol for dialysis at the RBRU and because of their skills, expertise and care, our family enjoyed 16 extra years with Mum for which my family and I are eternally grateful."


Valerie and Pete Coombe


Valerie at her 80th Birthday celebrations